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Stanmore Bay’s Josh Chase says he is “absolutely over the moon” at the recent announcement that Pharmac will fund the drug Trikafta.
Josh was born with cystic fibrosis (CF) and Trikafta has been shown to dramatically improve the lives of CF sufferers by clearing much of the mucus that clogs their lungs and digestive system.
Josh says the announcement that the drug will be funded means a two year fight, and a lot of fundraising effort are finally over.
He recently started on a two-year long trial of the drug, which he says has been life changing (HM November 28).
“Now I have peace of mind that when the trial ends, I can get Trikafta prescribed,” he says. He says the change in his health has been dramatic in a short time.
“I am over the moon for others being able to experience how freeing it is, especially children aged six and over – they may experience a life without struggle – I can’t even put into words how I feel about that. It’s life changing.”
